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Duchenne and Me is your pocket companion, helping you to stay on top of some aspects of your or your child's Duchenne. The App contains information that will help you, such as appointment and medication reminders. Questions about Duchenne? The help section may have the answer. Need your medical information in a hurry? It's just a tap away.

Key features:
• Dashboard: Your or your child's personal health data at a glance, including options to track height, weight, activity and test results
• Calendar: Help take control of your day by adding appointment and medication reminders
• Medical information section: Quick access to your or your child's medical information, with the option to add details of any treatments you are taking
• Help section: What's on your mind, do you have a question you would like to know the answer to? Chatbot may have the answer
• Emergency care considerations: Who are your emergency contacts, to share with doctors and helpful information to provide in an emergency about Duchenne

Duchenne and Me is developed and funded by PTC Therapeutics as a service to patients and their families.

Date of preparation: November 2018

What’s New

Version 2.0

We have a fantastic new update for you, we’ve spent the past few months tuning and improving the features you love as well as introducing some new enhancements:

- A refined user interface to improve your experience throughout
- Speed improvements to ensure your experience is as optimal as possible
- Reorder your dashboard
- Update your dashboard with the stretches you’ve completed
- Add your own custom widget (beta)
- Swipe between widget detail views
- Add multiple data entries at once, so you can update everything at the same time
- See which widgets need updating with a handy plus button
- See your progress towards new awards in the new Progress view (toggle between list and badge views)
- Add multiple medication doses and reminders against any medication, supplement or other item
- Easily log out and delete your account
- Track multiple children
- Switch between the children you’re tracking (if you’re a parent)
- Sign up as an independent child

Ratings and Reviews

5.0 out of 5
1 Rating

1 Rating

App Privacy

The developer, Cognite, has not provided details about its privacy practices and handling of data to Apple. For more information, see the developer’s privacy policy.

No Details Provided

The developer will be required to provide privacy details when they submit their next app update.


  • Family Sharing

    Up to six family members will be able to use this app with Family Sharing enabled.

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