followME Fabry Registry 4+

New England Survey Systems, Inc

    • Gratis

Skärmavbilder

Beskrivning

In participating in the followME Registry, not only are you a Pathfinder, you are also an ambassador for Fabry disease – thank you for being willing to share your journey. followME is a disease registry that will track the health of people living with Fabry disease over time. The goal is to evaluate how different types of disease management affect people living with Fabry. followME will gather and ultimately share data that can be used to support the broader Fabry Community. As part of the registry, you will be asked to fill out Patient Reported Outcomes (PRO) surveys using a secure website, smart phone or tablet. These systems are validated and secure, meaning that no one outside of the registry can access your data.

Nyheter

Version 1.0.0.4

minor update for iOS compatibility

Appintegritet

Utvecklaren New England Survey Systems, Inc har angett att appens integritetsrutiner kan inkludera hantering av data enligt beskrivningen nedan. Det finns mer information i utvecklarens integritetspolicy.

Data samlas inte in

Utvecklaren samlar inte in några data från den här appen.

Sekretessriktlinjer kan variera, till exempel utifrån de funktioner du använder eller din ålder. Läs mer

Mer från den här utvecklaren

NEForm ASA
Näringsliv
NEForm OXYKLH
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NEForm SMA2
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NEForm KAR-012
Näringsliv
NEForm OA
Näringsliv
NEForm SMA
Näringsliv

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