RareGuru: Rare Diseases 12+

RareGuru, LLC

Designad för iPad

    • Gratis

Skärmavbilder

Beskrivning

If you’re suffering from a rare disease or chronic illness or a caregiver for someone who is, you’re not alone. Connect with other patients and caregivers, learn about your condition, and share your story on RareGuru.

RareGuru is a free mobile app that connects caregivers, parents, and patients with similar rare diseases or symptoms. Take back control of your health and future by finding the resources and the social health group you need to thrive.

Connect with knowledgeable and motivated patients and caregivers like you. Track your symptoms, share your diagnosis, learn more about your disease and help others through their healing process.

Get support from people who share your disease. Find and show support for chronic diseases, depression, symptoms and more with a network of patients and caregivers.

Share as much or as little about yourself and your condition as you’d like. Whether you have a chronic illness, newly identified disease or a mental disease, what you share with whom is your decision.

Don’t let your disease isolate you from the world. Connect and learn together with RareGuru.

RareGuru Features:

Connect, Share & Network
- Create a private or public profile sharing what information you’re comfortable with.
- RareGuru matches you with other users who share a similar diagnosis or symptoms.
- Filter your matches based on location, age, gender, and user type.
- Message through private or group chats.
- Safe and secure social networking.

Symptom Tracker
- Track symptoms and take notes to evaluate your condition.
- Export data trends for sharing with doctors and specialists

Rare Disease and Chronic Illness Database
- RareGuru’s disease database contains up to 7,000 rare diseases and chronic conditions and more than 21,000 symptoms.
- The disease database is regularly updated based on data from the United States Genetic and Rare Disease Information Center (GARD).
- Diagnoses not yet in the disease database earn a unicorn icon to indicate the rarity.

.Global Disease map
- Search the global disease map to see where certain diseases are more or less rare.
- Find out how many RareGuru users share your diagnosis in any location.

Rare Charities
- RareGuru spotlights organizations serving the rare disease community.
- Users can select their favorite rare charities during onboarding.

RareGuru helps connect and support those experiencing rare diseases. Download today and join us.

Nyheter

Version 2.0.0

What's New in Version 2.0 - A Fresh Perspective

We're thrilled to unveil the next chapter in our journey - Version 2.0 of RareGuru. This isn't just an update; it's a complete transformation, envisioned from the ground up to enhance your experience, streamline your navigation, and broaden your horizons. Here's what's new:

Sleek, New Design: Dive into a world where elegance meets functionality. Our app has been completely rewritten to introduce a fresh look and feel, ensuring a more intuitive and engaging user experience.

Enhanced Navigation: The introduction of a universal app drawer makes accessing your profile, preferences, and settings easier than ever. It's all at your fingertips, providing a seamless journey through the app.

Revolutionized Disorder and Symptoms Management: We've reimagined how you manage disorders and symptoms. Our goal? To provide you with the tools you need for better management, understanding, and control.

Symptom Tracker, Reimagined: Say hello to a new level of tracking with our improved symptom tracker. Now, you can log multiple symptoms within a day, edit past entries, and view your symptoms over any given period. It's empowerment at its best.

Explore Like Never Before: Discover and connect in new ways with our Explorer feature. Search profiles or filter by disorder to find exactly what you want. It's your journey, personalized.

Map Interface, Redefined: Navigate confidently with our new map interface, featuring improved markers that help you explore new insights about the rare disease community.

Chat, Enhanced: Communication is key, and our new chat interface makes it more dynamic. Add images, share links, and engage in conversations that matter.

Groups, Reimagined: Whether you're looking to join a public group or create a private sanctuary, our new group interface provides the platform to connect and share with others who understand.

Smarter Matching Algorithms: Our improved matching algorithms now deeply consider your preferences, ensuring more accurate and meaningful connections.

This version represents a leap forward, a testament to our commitment to innovation and continuous improvement. Your feedback has been instrumental in shaping this update, and we're excited for you to experience the enhancements firsthand.

Update to Version 2.0 today, and transform how you engage with RareGuru. Here's to new beginnings!

Appintegritet

Utvecklaren RareGuru, LLC har angett att appens integritetsrutiner kan inkludera hantering av data enligt beskrivningen nedan. Det finns mer information i utvecklarens integritetspolicy.

Data som är kopplade till dig

Följande data kan komma att samlas in och kopplas till din identitet:

  • Hälsa och motion
  • Kontakt­information
  • Identifierare
  • Användnings­data

Data som inte kopplas till dig

Följande data kan samlas in men den kopplas inte till din identitet:

  • Användar­innehåll
  • Diagnostik

Sekretessriktlinjer kan variera, till exempel utifrån de funktioner du använder eller din ålder. Läs mer

Du kanske också gillar

Healp - Your Health Community
Hälsa och motion
Embleema
Hälsa och motion
Chronically Simple
Medicin
Menda: Virtual Pain Care
Hälsa och motion
mymee inc
Hälsa och motion
PatientsLikeMe
Hälsa och motion