followME Fabry Registry 4+

New England Survey Systems, Inc

    • 免費

簡介

In participating in the followME Registry, not only are you a Pathfinder, you are also an ambassador for Fabry disease – thank you for being willing to share your journey. followME is a disease registry that will track the health of people living with Fabry disease over time. The goal is to evaluate how different types of disease management affect people living with Fabry. followME will gather and ultimately share data that can be used to support the broader Fabry Community. As part of the registry, you will be asked to fill out Patient Reported Outcomes (PRO) surveys using a secure website, smart phone or tablet. These systems are validated and secure, meaning that no one outside of the registry can access your data.

新內容

版本 1.0.0.4

minor update for iOS compatibility

App 隱私權

開發者「New England Survey Systems, Inc」指出 App 的隱私權實務可能包含下方描述的資料處理。如需更多資訊,請參閱開發者的隱私權政策

不收集資料

開發者不會從這個 App 收集任何資料。

隱私權實務可能因你使用的功能或你的年齡等因素而有所不同。進一步瞭解

更多此開發者的作品

PSoHO
商業
NEForm SMA
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NEForm SMA2
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NEForm KAR-012
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NEForm OA
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NEForm ASA
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