Johns Hopkins EpiWatch™: Track Your Epilepsy Seizures. Track Your Treatment.
EpiWatch is an Apple Watch app and research study for persons over 16 with epilepsy. Those with epilepsy can use EpiWatch to track their seizures, potential seizure triggers, medications, and share the data with Johns Hopkins researchers. The movement and heart rate data collected with EpiWatch’s continuous tracking functionality is actively being used in the creation of an app to detect seizures. EpiWatch currently enables participants to send a message to a family member or caregiver to let them know when they are experiencing a seizure. Participants can view information they enter into the
app at any time. A dashboard allows for summary data to be viewed with caregivers and physicians.
EpiWatch is not a seizure detector. You should not rely on EpiWatch to get help for your seizures. Learn more at www.hopkinsmedicine.org/epiwatch.
How the App and Study Work
EpiWatch enables you to take surveys, enter daily journals and participate in other activities so you and Hopkins researchers can better understand your entire experience—your seizures, treatments and medication side effects. The app also includes a medication journal, as well as an interactive game to measure a seizure’s impact on your responsiveness.
EpiWatch integrates with Health App to augment heart rate, accelerometer and gyroscope data collected by both iPhone and Apple Watch. Johns Hopkins researchers will use this data to measure changes in your heart rate and movement during a seizure.
You can participate if you are at least 16 years old, a U.S. resident and …
• Own an Apple Watch that is paired with iPhone running the latest version operating system.
• Have epilepsy and have had at least one seizure in the past year.
• Do not have any major learning or physical disabilities that would impair your ability to interact with the app while participating in this study. (NOTE: Family and caregivers may help you carry out some of the activities of the study.)
• Are able to open this app on Apple Watch at the beginning of at least some of your seizures. If you tend to experience auras, or warning sensations, you may be able to perform the tasks needed for this study. (NOTE: Family and caregivers may help you carry out some of the activities of the study.)
This app is designed for research and education purposes only. This app is not meant to provide medical advice, attention, or treatment.
Please note: SMS should not be depended upon by patients and their caregivers to get emergency help for seizures. Even though EpiWatch provides an SMS feature which can alert a caregiver using their mobile phone number, there are multiple factors that could impede, prevent or delay an SMS message alert from being received by the intended recipient.
Principal Investigator: Gregory Krauss, M.D. | IRB00077237
EpiWatch™ is a trademark of Johns Hopkins University
-You can now start tracking a seizure directly from the watch
Ratings and Reviews
My thoughts on this App
I like this App. It has kept me on track, l’ve been able to use the journal. I like the fact that it keeps track of time for you, allows you to go back and make changes to the journal if you need to. The tracking feature is also nice as well as the test and survey questions.
A few things I notice in the watch app and maybe it’s because I am new to Apple Watch but
-It would be great to have another page in the watch app just so there isn’t as much stuff in one area to accidentally bump
The first page would have Experiencing a seizure/aura,
tracking button, and log seizure button would still be on this page but be spaced apart from the experiencing a seizure/aura button.
-If I do accidentally hit experiencing Aura/Seizure button sometimes I won’t hit the cancel button because it is too easy to hit the first two buttons when I am trying to scroll down to cancel or I am meaning to hit cancel but I hit another button because they all are just close together
-The other page would have your survey reminder, baseline HR, and practice response test.
In the phone app:
-If you logged a seizure that was accidental there was a delete button so you could remove the event from the calendar completely and not just flag it.
-I am also not able to access the tracking button from my phone, because the button for it is so far over to the side for me to slide it over. I have to use my watch
With those thoughts in mind I still like this app. It has made me feel like II have a helper or an assistant keeping track of things I also like the purple color.
Sorry to say but so far in my experience the app is kinda buggy. It asks for information that you can't then input. It has a hard time syncing with your watch at times. The watch app seems to kill my watches battery much more quickly than I am accustom to. Normally my watch has at least 35% battery at bedtime,today it was depleted at 5PM. I understand they are attempting to do great things but if the app isn't ready for prime time maybe they should hold off til it's in a lil better state.
Major bugs since update on iphone 7
Watch and app were updated and the tracking feature is great although when I have a Seizure and try to log it, it never shows up on my dashboard to log and If i log it from the watch it still never shows up, also heart rate baseline will start but once it has finished it either freezes on 00:00 and wont let me "save data" or it finishes and when i click save data nothing happens. Ive tried doing the walking test first and vice versa. This app has really helped me and my doctors get an idea of whats going on and I now heavily rely on the quickness of being able to just hit a button and it logs my seizure for me.
- The Johns Hopkins University
- 110.8 MB
- Health & Fitness
Requires iOS 10.0 or later. Compatible with iPhone and iPod touch.
- Age Rating
- Rated 12+ for the following:
- Infrequent/Mild Medical/Treatment Information
- © Johns Hopkins University School of Medicine
With Family Sharing set up, up to six family members can use this app.