my florio ITP 17+

Name: my florio ITP
Rating: 2.3 (3 reviews)
Author: Florio GmbH

Florio GmbH

- 2.3 • 3개의 평가

- 무료

iPhone 스크린샷

설명

my florio ITP is a digital diary intended to assist ITP patients to manage their condition. This is achieved by recording condition-related data including associated treatment, without the application providing specific treatment suggestions.

With my florio ITP users are able to record, organize, and track their health information including platelet counts, bruises, petechiae, bleeds, fatigue, mood, activity levels, treatment information, and medical appointments. With the information added by the user the application is able to collate and present personalized trends that may help patients better understand their condition, and optionally share with their healthcare professional.

The application does not provide recommendations to the user or their HCP to alter a previously prescribed treatment or therapy.

2024년 10월 16일

버전 3.3.2

Strengthened password criteria to keep accounts even more secure
Bug fixes and minor enhancements

2.3/5

3개의 평가

Needs AI Improvement

The concept of an ITP app is a much needed one for those of us with this condition, juggling lab visits, up and down platelet counts, a changing variety of medications, diets- trying to make sense of it all. After trying to write down everything in a journal, I was excited to hear there was a specialized app. This app, however, does not live up to expectations. It strikes me more as a data collector for doctors, pharma, which isn’t a bad thing. It’s just not so tuned in from a patient point of view, so I probably won’t continue using. Thus not so useful for collecting data either.
Thirty + minutes of entering in platelet counts going back three years ( looking for possible cause) was especially tedious for anything more than a year ago (where is the separate year dial?). Medications entry was a bit easier though the start and stop prompts were confusing (is it referring to a single infusion day, or 1st and last over months with stops and starts and other medications in between?). I assured myself it would be worthwhile in the end, but was surprised to find just a chronological list starting with todays date (where are the graphs,colors, a filter and sort function?) There is no place to enter diet or supplements, or acupuncture, yoga or other healing practices, sleep, which all seem major omissions. No place to enter medication side effects ( I’ve had a couple weird extreme side effects that I still don’t know what happened, or what caused it, doctors not a clue). No place to add side notes or edits on a day without having to delete the day. How about a notes section to jot down ideas to further explore more, list of favorable and less favorable food/drink, questions for the doctor visits, etc?
This is a very basic app that is not any more useful than notes in a calendar and my online Kaiser lab results. We are all looking for some cause and effect in the seemingly random roller coaster ride that is ITP. Where’s the AI to make sense of all our various data? At least help us sort it better.
In the meantime, I’ll be going back to my original paper journal.