NORD® IAMRARE®

Enroll in rare disease studies

Free · Designed for iPad

Developed by the National Organization for Rare Disorders (NORD®), the IAMRARE® platform allows you to find and participate in available rare disease studies and registries. Whether you or your loved one has a rare disease, you can take surveys and contribute data that could help advance research. Built with patients and caregivers in mind, the IAMRARE platform allows you to: • Transition between your computer and your mobile device • Opt-in to receive survey notifications that appear right on your device • Answer questions and upload selected health records • Work at your own speed by saving your progress and returning later • Review and save your responses to keep track of your health information • View graphs and charts to better understand your rare disease community The IAMRARE platform is secure and follows strict guidelines to ensure your data is protected. It supports English, Spanish, and French, with additional languages to come.

Ratings & Reviews

  • 5.0
    out of 5
    3 Ratings

Bug fixes and performance improvements

Version 1.0.60

The developer, THE NATIONAL ORGANIZATION FOR RARE DISORDERS INC, indicated that the app’s privacy practices may include handling of data as described below. For more information, see the developer’s privacy policy .

  • Data Linked to You

    The following data may be collected and linked to your identity:

    • Health & Fitness
    • Contact Info
    • Sensitive Info

Privacy practices may vary, for example, based on the features you use or your age. Learn More

Accessibility

The developer has not yet indicated which accessibility features this app supports. Learn More

Information

  • Seller
    • THE NATIONAL ORGANIZATION FOR RARE DISORDERS INC
  • Size
    • 59.2 MB
  • Category
    • Medical
  • Compatibility
    Requires iOS 13.0 or later.
    • iPhone
      Requires iOS 13.0 or later.
    • iPad
      Requires iPadOS 13.0 or later.
    • iPod touch
      Requires iOS 13.0 or later.
    • Mac
      Requires macOS 11.0 or later and a Mac with Apple M1 chip or later.
    • Apple Vision
      Requires visionOS 1.0 or later.
  • Languages
    • English
  • Age Rating
    18+
    • 18+
    • Learn More
    • Frequent
      Medical Treatment information

      Contains
      Health or Wellness Topics
  • Copyright
    • © NORD®
  • Privacy Policy

    • More by THE NATIONAL ORGANIZATION FOR RARE DISORDERS INC

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