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Description

Phendo - A study to track, manage, and understand endometriosis.

Phendo is an observational research study to establish a catalog of the signs and symptoms of endometriosis as experienced by you, people with endometriosis. In addition, opportunities to reflect upon your collected data may help you in managing your disease.


Columbia University invites you to join this study about endometriosis to enhance understanding about the disease.


You can track your experience of endometriosis in Phendo at your convenience, track more or fewer signs, symptoms, comorbid conditions, and self management information, or stop tracking at any time.


How this study works:
- You will be able to join the study after signing the consent form.
- We will ask you to track individual instances of symptoms and signs of the disease as they occur using the “track this moment” feature.
- We will ask you to track endometriosis symptoms and signs of the disease at a daily level through “track this day”.
- You will be able to review items through time as you enter them into the app.
- All information collected will be stored separately from user name using an id number.


Who is eligible to participate?
- Adolescents and adults who have reached the onset of menarche, that is, who have had at least one menstrual period.
- Those under the age of 18 will need parental permission to participate, and parents or guardians will be asked to co-sign consent.
- Adolescents and adults who have experienced symptoms of endometriosis in the past 3 months.


Who is running this study?
- Researchers from Columbia University’s Department of Biomedical Informatics as part of the Citizen Endo research project.


Phendo - A study to track, manage, and understand endometriosis.

What’s New

Version 2.0

- Added version number to profile screen.
- Support for maintenance improvements.
- Bug Fixes.

Ratings and Reviews

4.4 out of 5
8 Ratings

8 Ratings

kaysevans ,

Needs a little work

I love that this app asks the questions that I don’t seem to be asked by anyone, with symptoms that have not been communicated to me as being related to endo. I love that I have the ability to track my day in general and options to track specific moments.
With that being said, half of the time the app does not log my entries and does not count anything toward my tracking history. I would love to see a trend section to compile all of the symptoms experienced so I can communicate these experiences with my doctor.
Other than that, it’s a very good app.

jannicmcn ,

Finally!

I’ve tried multiple endo/symptom tracking apps and they all fell short of my expectations. I’ve only had this app two days and it’s already so much more useful and intuitive than any other app I’ve tried for tracking my endo symptoms. It’s so encouraging to know that there is actually research being done based on info from this app too. I rarely go to the doctor and I’m terrible at conveying the severity of my symptoms when I do go, I think this will be an incredibly helpful tool.

KNHawk95 ,

Great Options

So I haven’t used the app for super long but so far what I’ve seen is great for tracking cause and affect of certain foods or activities in your own experience with endo. I’ve only known about mine since about April this year (2018). But I’ve been struggling with symptoms for years now. This is a great way to get awareness out for endo but also great for your own health to track what’s flaring up and what might have caused it.

App Privacy

The developer, Noemie Elhadad, has not provided details about its privacy practices and handling of data to Apple. For more information, see the developer’s privacy policy.

No Details Provided

The developer will be required to provide privacy details when they submit their next app update.

Supports

  • Family Sharing

    With Family Sharing set up, up to six family members can use this app.

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