Screenshots

Description

This app is a personalized tool designed to deliver informational resources about sarcoidosis, supplying links to disease information and advocacy groups, as well as information about local specialists and support groups. Users also have the ability to opt-in to a research study, which will provide researchers with important data about this rare disease. There will be optional, once-a-month surveys that ask users about how sarcoidosis affects their lives, paired with passive data collection from background health apps, such as step-tracking. The insights gained from this study may help raise awareness of the impact of sarcoidosis, with the ultimate goal of improving quality of life for people with this disease.

What’s New

Version 2.0

Migrated to the Medable Axon Platform, Added Air quality data capture

Ratings and Reviews

4.2 out of 5
5 Ratings

5 Ratings

Sr with sarcoid ,

Great!

Nice to be able to contribute to medical research to learn more about this awful disease!

SVseadog17 ,

Does not let me sign in

Today I downloaded this app and attempted to put information in the sign in sheet. I keep getting an error message, and no matter how I format my data, it will not let me sign up. Is this study full and not taking any more patients? Or is the app not working today?

Raymond Brigleb ,

Great!

Really glad to see this app.

App Privacy

The developer, Penn Medicine, has not provided details about its privacy practices and handling of data to Apple. For more information, see the developer's privacy policy.

No Details Provided

The developer will be required to provide privacy details when they submit their next app update.

Information

Seller
The Trustees of the University of Pennsylvania
Size
55.7 MB
Category
Medical
Compatibility

Requires iOS 11.0 or later. Compatible with iPhone, iPad, and iPod touch.

Languages

English

Age Rating
17+
Frequent/Intense Medical/Treatment Information
Copyright
Price
Free

Supports

  • Family Sharing

    With Family Sharing set up, up to six family members can use this app.

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