RareGuru: Rare Diseases 12+

Caregiver & Patient Community

RareGuru, LLC

Designed for iPhone

    • 4.8 • 48 Ratings
    • Free

iPhone Screenshots


Having a rare disease or chronic illness doesn't mean you're alone. RareGuru connects those impacted by rare or chronic diseases to share resources, stories, and support.

If you’re suffering from a rare disease or chronic illness or a caregiver for someone who is, you’re not alone. Connect with other patients and caregivers, learn about your condition, and share your story on RareGuru.

RareGuru is a free mobile app that connects caregivers, parents, and patients with similar rare diseases or symptoms. Take back control of your health and future by finding the resources and the social health group you need to thrive.

Connect with knowledgeable and motivated patients and caregivers like you. Track your symptoms, share your diagnosis, learn more about your disease and help others through their healing process.

Get support from people who share your disease. Find and show support for chronic diseases, depression, symptoms and more with a network of patients and caregivers.

Share as much or as little about yourself and your condition as you’d like. Whether you have a chronic illness, newly identified disease or a mental disease, what you share with whom is your decision.

Don’t let your disease isolate you from the world. Connect and learn together with RareGuru.

RareGuru Features:

Connect, Share & Network
- Create a private or public profile sharing what information you’re comfortable with.
- RareGuru matches you with other users who share a similar diagnosis or symptoms.
- Filter your matches based on location, age, gender, and user type.
- Message through private or group chats.
- Safe and secure social networking.

Symptom Tracker
- Track symptoms and take notes to evaluate your condition.
- Export data trends for sharing with doctors and specialists

Rare Disease and Chronic Illness Database
- RareGuru’s disease database contains up to 7,000 rare diseases and chronic conditions and more than 21,000 symptoms.
- The disease database is regularly updated based on data from the United States Genetic and Rare Disease Information Center (GARD).
- Diagnoses not yet in the disease database earn a unicorn icon to indicate the rarity.

.Global Disease map
- Search the global disease map to see where certain diseases are more or less rare.
- Find out how many RareGuru users share your diagnosis in any location.

Rare Charities
- RareGuru spotlights organizations serving the rare disease community.
- Users can select their favorite rare charities during onboarding.

RareGuru helps connect and support those experiencing rare diseases. Download today and join us.

What’s New

Version 1.2.6

This version corrects several bugs related to navigation and password resets.

Ratings and Reviews

4.8 out of 5
48 Ratings

48 Ratings

Huge dice fan ,

RareGuru Is A Must

Wow I love RareGuru. You select your diagnosis and or symptoms if you wanna list your symptoms, then you get a selection of connections based on the information in your profile. You can make the list of your symptoms public or private and there’s even a symptom tracker. There’s no newsfeed or posting. Once you send a connect request and it’s accepted you get to talk one on one. So it’s like a community of people who share your diagnosis or symptoms with one on one emotional support through those good and bad days. I’d highly download RareGuru cuz here on RareGuru you aren’t alone. If someone doesn’t share your diagnosis or symptoms that you know of, then download RareGuru and I promise there’s people out in the world. You just haven’t met them yet but on RareGuru you will.

Developer Response ,

Huge dice fan, we are a huge fan of you! You have found your village and we're thankful that you will be here to welcome future RareGuru users with similar diagnoses and symptoms. Thank you for your feedback and for taking the time to write a review. Please reach out to us with any ideas to enhance the app for future builds. Stay well!

GardenGrams ,

66 years to get diagnosed

I wish getting a diagnosis was as easy as using RareGuru. It was easy to set up and start matching with others. I have been diagnosed with several chronic conditions (all also in the app) but only recently diagnosed with a rare genetic disease after several family members were diagnosed. Turns out I’m the real patient zero 😆 now all of my other common conditions and symptoms are starting to trace back to my rare diagnosis. It took me 66 years to get this diagnosis and I’m glad to have this app to connect with others like me. I feel less isolated and more hopeful.

Developer Response ,

GardenGrams, you are on point! While all rare diseases are unique, the path to diagnosis is shockingly common. The average time it takes for patients to receive a rare diagnosis is 4.8 years, and 95% of rare diseases lack an FDA approved treatment. We hope RareGuru will empower users like you to help others eliminate the time, frustration, and isolation that usually accompanies a rare diagnosis.

binary hipster ,

Positive community and resources

This is such an inspirational app. I love the idea of bringing together isolated individuals and groups in the rare disease community to share and learn in a positive environment. This is what the internet was made for! After reading the founder’s story and some of the other shared stories on the blog, I’m really excited to see how this app grows. This has potential to be life changing for those of us who care for others or who suffer from a rare disease ourselves.

Developer Response ,

Binary Hipster, thank you for your feedback! We too are inspired by the users who have shared their stories on our blog. They show that although the diseases themselves are unique, families living with them share a very similar determination to find out as much as they can about their diagnosis and use that information for their care. We love that you found RareGuru and know you will be a valuable member of our community. Stay well.

App Privacy

The developer, RareGuru, LLC, indicated that the app’s privacy practices may include handling of data as described below. For more information, see the developer’s privacy policy.

Data Linked to You

The following data may be collected and linked to your identity:

  • Health & Fitness
  • Contact Info
  • Identifiers
  • Usage Data

Data Not Linked to You

The following data may be collected but it is not linked to your identity:

  • User Content
  • Diagnostics

Privacy practices may vary, for example, based on the features you use or your age. Learn More

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