Progeria Connect
Social Networking
Only for iPhone
Free · Designed for iPhone. Not verified for macOS.
iPhone
Progeria Connect is a private, online social platform for members of the The Progeria Research Foundation’s global community, built to connect and unite our small but diverse network of families in a secure and confidential environment. Once a member is accepted into Progeria Connect, patients, family members, researchers and clinicians, and other caregivers will have access to:
Current news and information: stay updated with the latest research and other Progeria-related news;
Live activity feeds: see what other members are up to and share experiences;
Member forums: ask questions and join conversations;
Private messaging: for 1-to-1 conversations with another member;
Member directory: easily find and contact other site members around the world;
Private user groups: connect with members of the community who share common interests;
Host and attend online events: no matter where you are in the world!
Feature Breakdown
Powerful search & targeting filters that enable members of the community to find and connect with each other easily and effortlessly;
Post and share messages with other members to see via a news feed. Add pictures, videos or links;
Organize or attend virtual meetups for your community and add them to your calendar;
Push your events to your Facebook, LinkedIn, and Twitter pages to boost exposure and attendance;
Leverage your community network to publicize your projects, research, foundations and campaigns;
Contribute to discussion forums around specific topics;
Join community groups within the broader community to allow you to connect with like-minded people on a similar journey;
Planning a trip abroad? Let local members know you when you will be there and see who is available to meet up;
Communicate with other members through Direct Messaging;
Tag people in your posts or comments to make sure they see them and hashtag your posts to make them searchable.
Ratings & Reviews
- This app hasn’t received enough ratings or reviews to display an overview.
What's new?
We update our app as often as possible to make it faster and more reliable for you.
The latest version contains bug fixes and performance improvements.
The developer, Sciensus Pharma Services Limited, indicated that the app’s privacy practices may include handling of data as described below. For more information, see the developer’s privacy policy .
Data Used to Track You
The following data may be used to track you across apps and websites owned by other companies:
- Usage Data
Data Not Linked to You
The following data may be collected but it is not linked to your identity:
- Usage Data
Accessibility
The developer has not yet indicated which accessibility features this app supports. Learn More
Information
- Seller
- Sciensus Pharma Services Limited
- Size
- 104.5 MB
- Category
- Social Networking
- Compatibility
Requires iOS 16.4 or later.
- iPhone
Requires iOS 16.4 or later. - Mac
Requires macOS 12.0 or later and a Mac with Apple M1 chip or later. - Apple Vision
Requires visionOS 1.0 or later.
- iPhone
- Languages
- English
- Age Rating
16+
- 16+
- Contains
Unrestricted Web Access
Messaging and Chat
User-Generated Content
- Copyright
- © 2026 Sciensus Pharma Services Limited