Progeria Connect
Redes sociales
Sólo para iPhone
Gratis · Diseñada para iPhone. No verificada para macOS.
iPhone
Progeria Connect is a private, online social platform for members of the The Progeria Research Foundation’s global community, built to connect and unite our small but diverse network of families in a secure and confidential environment. Once a member is accepted into Progeria Connect, patients, family members, researchers and clinicians, and other caregivers will have access to:
Current news and information: stay updated with the latest research and other Progeria-related news;
Live activity feeds: see what other members are up to and share experiences;
Member forums: ask questions and join conversations;
Private messaging: for 1-to-1 conversations with another member;
Member directory: easily find and contact other site members around the world;
Private user groups: connect with members of the community who share common interests;
Host and attend online events: no matter where you are in the world!
Feature Breakdown
Powerful search & targeting filters that enable members of the community to find and connect with each other easily and effortlessly;
Post and share messages with other members to see via a news feed. Add pictures, videos or links;
Organize or attend virtual meetups for your community and add them to your calendar;
Push your events to your Facebook, LinkedIn, and Twitter pages to boost exposure and attendance;
Leverage your community network to publicize your projects, research, foundations and campaigns;
Contribute to discussion forums around specific topics;
Join community groups within the broader community to allow you to connect with like-minded people on a similar journey;
Planning a trip abroad? Let local members know you when you will be there and see who is available to meet up;
Communicate with other members through Direct Messaging;
Tag people in your posts or comments to make sure they see them and hashtag your posts to make them searchable.
Calificaciones y reseñas
- Esta app no ha recibido suficientes calificaciones ni reseñas para mostrar un resumen.
What's new?
We update our app as often as possible to make it faster and more reliable for you.
The latest version contains bug fixes and performance improvements.
El desarrollador (Sciensus Pharma Services Limited) indicó que las prácticas de privacidad de la app pueden incluir el manejo de datos que se describe a continuación. Para obtener más detalles, consulta la política de privacidad del desarrollador .
Datos usados para rastrearte
Los siguientes datos pueden usarse para rastrearte en apps y sitios web que son propiedad de otras empresas:
- Datos de uso
Datos no asociados con tu identidad
Los siguientes datos pueden recopilarse, pero no están asociados con tu identidad:
- Datos de uso
Accesibilidad
El desarrollador aún no ha indicado cuáles funciones de accesibilidad admite esta app. Obtén detalles
Ficha técnica
- Vendedor
- Sciensus Pharma Services Limited
- Tamaño
- 63.9 MB
- Categoría
- Redes sociales
- Compatibilidad
Requiere iOS 15.1 o posterior.
- iPhone
Requiere iOS 15.1 o posterior. - iPod touch
Requiere iOS 15.1 o posterior. - Mac
Requiere macOS 12.0 o posterior y una Mac con el chip M1 de Apple o posterior. - Apple Vision
Requiere visionOS 1.0 o posterior.
- iPhone
- Idiomas
- Inglés
- Edad
16+
- 16+
- Contiene
Acceso web sin restricciones
Mensajería y chat
Contenido generado por el usuario
- Copyright
- © 2026 Sciensus Pharma Services Limited
