Epilepsy Journal is an app which allows you to quickly document daily variables concerning your epilepsy, such as seizure triggers, types etc. The information you provide is organized into easy to read graphs which allow for quick visualization of your individual epilepsy trends and patterns overtime. This app can serve as a valuable communication aid, by allowing you to generate a straightforward and professional report which can be shared with your physicians.
In general, we hope that this App will allow you to:
1) track epilepsy trends and patterns over time
2) objectively determine effectiveness of your epilepsy treatments
3) improve success of doctors appointments
Epilepsy is a chronic neurological disorder which affects 1 in 26 people worldwide. It can have a relapsing, remitting, and unpredictable course. Treatment of epilepsy can be frustrating, and has been accurately referred to as being similar to the popular “whack a mole” game. Whether your epilepsy is mild or severe, refractory or controlled, it is critical to objectively and consistently monitor certain factors such as number of seizures, seizure triggers, AED drug or ketone levels, and other vital information. Keeping a detailed epilepsy journal will allow you to quickly notice any changes to your epilepsy, as well as provide you with impartial evidence as to whether your epilepsy treatment is truly effective or losing effectiveness over time.
- Easy to use
- Record seizure details (as much or as little as you like)
- Visual representation of data
- Generate reports
- Keep track of medications with reminders
- Customizable to fit your individual epilepsy
- Full version completely FREE
Our Story/ Mission:
Our daughter Olivia is our inspiration for this app. Olivia has a refractory and severe epilepsy which began at age 1. Once Olivia´s epilepsy started we were advised by our physicians to keep a written epilepsy journal, in order to track trends and treatment response overtime. Although the journal was helpful in allowing us to objectively monitor the effectiveness of her epilepsy treatments, it was very time consuming and tended to be disorganized; As well, the hundreds of pages of notes did not help us when it became most critical to quickly and accurately summarize months worth of seizure history, (for example during emergency hospital visits or follow up appointments). During our experience navigating the neurology health care system, we found accurate and effective communication to be a key factor in successfully working with doctors and achieving ideal seizure control.
We created this app as a free and simple way to monitor your epilepsy; track trends and patterns, objectively determine effectiveness of seizure treatment overtime, and improve success of doctors appointments.
Since epilepsy contains dozens of ever changing variables, we decided to organize data into simple visuals which demonstrate seizure trends and patterns over a time span of months to years.
Our epilepsy journal allows you to quickly document all the important variables concerning your epilepsy, and to generate a simple and easy to read report to print out or email your doctors.
We hope that this app enables you to grasp a better understanding of your own individual epilepsy, and that it empowers you as an effective communicator and advocate within your epilepsy health care team.
- Danish Language
- Data Export Feature
- Bug fixed and performance improvements
Ratings and Reviews
I like the concept of this app. It crashes to much. And you need a more simple way to add old seizure information, instead of me scroll the calendar back 15 years. And you need to have an area were every seizure is easily accessible by year, even if its 20 years ago. I took all my info from another app to use this app and those are my issues. The keyboard covers what I am typing Please consider these updates.
Timer count is super slow
Love the features of this app. Obviously very well thought out and put together. Thank you. I was surprised today (second day of use) when I hit stop on the seizure button that it had only been about 4 minutes on the timer. I’m timing it now and when this app stopwatch hit 30 seconds my Apple stopwatch app was around 2 mins 20 seconds. Only drawback I’ve found so far. Now that I’m done writing this review 50 seconds is almost 9 real time minutes. I hope there’s an easy solution to fix that but I still will use the app nonetheless!
I love this app and how it reminds me to take my meds because I have a bad memory, only thing I’ve been trying to learn to do is how to record when I use my magnet for the VNS whenever I feel a seizure fixing to happen, I also tried to email my doctor all my records on this app and when I try to do this the app crashes automatically on me every time please help fix this I would appreciate it, if anyone knows how to do this please let me know I would greatly appreciate the help, ty
Developer Response ,
Hi, thank you for your review and feedback. We just released an update for the app that resolved all the bugs that you mentioned. Please email us at firstname.lastname@example.org if you. notice anything else and we will resolve it right away.
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- Donny Cosic
- 35 MB
- Requires iOS 12.0 or later.
- Requires iPadOS 12.0 or later.
- iPod touch
- Requires iOS 12.0 or later.
- Requires macOS 11.0 or later and a Mac with Apple M1 chip or later.
English, Croatian, Danish, Dutch, French, Georgian, German, Greek, Hindi, Italian, Japanese, Korean, Norwegian Bokmål, Polish, Portuguese, Romanian, Russian, Serbian, Simplified Chinese, Spanish, Swedish
- Age Rating
- © OllyTree Applications
- In-App Purchases
- Premium Version $7.99
- Large Donation $3.99
- Mega Donation $7.99
- Medium Donation $1.99
- Small Donation $0.99
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