Epilepsy Journal 4+

Epilepsy Management App

Donny Cosic

Designed for iPad

    • 3.2 • 17 Ratings
    • Free
    • Offers In-App Purchases

Screenshots

Description

Epilepsy Journal is an app which allows you to quickly document daily variables concerning your epilepsy, such as seizure triggers, types etc. The information you provide is organized into easy to read graphs which allow for quick visualization of your individual epilepsy trends and patterns overtime. This app can serve as a valuable communication aid, by allowing you to generate a straightforward and professional report which can be shared with your physicians.

In general, we hope that this App will allow you to:

1) track epilepsy trends and patterns over time
2) objectively determine effectiveness of your epilepsy treatments
3) improve success of doctors appointments


Epilepsy is a chronic neurological disorder which affects 1 in 26 people worldwide. It can have a relapsing, remitting, and unpredictable course. Treatment of epilepsy can be frustrating, and has been accurately referred to as being similar to the popular “whack a mole” game. Whether your epilepsy is mild or severe, refractory or controlled, it is critical to objectively and consistently monitor certain factors such as number of seizures, seizure triggers, AED drug or ketone levels, and other vital information. Keeping a detailed epilepsy journal will allow you to quickly notice any changes to your epilepsy, as well as provide you with impartial evidence as to whether your epilepsy treatment is truly effective or losing effectiveness over time.

App Features:
- Easy to use
- Record seizure details (as much or as little as you like)
- Visual representation of data
- Generate reports
- Keep track of medications with reminders
- Customizable to fit your individual epilepsy
- Full version completely FREE



Our Story/ Mission:

Our daughter Olivia is our inspiration for this app. Olivia has a refractory and severe epilepsy which began at age 1. Once Olivia´s epilepsy started we were advised by our physicians to keep a written epilepsy journal, in order to track trends and treatment response overtime. Although the journal was helpful in allowing us to objectively monitor the effectiveness of her epilepsy treatments, it was very time consuming and tended to be disorganized; As well, the hundreds of pages of notes did not help us when it became most critical to quickly and accurately summarize months worth of seizure history, (for example during emergency hospital visits or follow up appointments). During our experience navigating the neurology health care system, we found accurate and effective communication to be a key factor in successfully working with doctors and achieving ideal seizure control.
We created this app as a free and simple way to monitor your epilepsy; track trends and patterns, objectively determine effectiveness of seizure treatment overtime, and improve success of doctors appointments.
Since epilepsy contains dozens of ever changing variables, we decided to organize data into simple visuals which demonstrate seizure trends and patterns over a time span of months to years.
Our epilepsy journal allows you to quickly document all the important variables concerning your epilepsy, and to generate a simple and easy to read report to print out or email your doctors.
We hope that this app enables you to grasp a better understanding of your own individual epilepsy, and that it empowers you as an effective communicator and advocate within your epilepsy health care team.

What’s New

Version 1.15

- Danish Language
- Data Export Feature
- Bug fixed and performance improvements

Ratings and Reviews

3.2 out of 5
17 Ratings

17 Ratings

mysherriamore ,

Needs improvement

I like the concept of this app. It crashes to much. And you need a more simple way to add old seizure information, instead of me scroll the calendar back 15 years. And you need to have an area were every seizure is easily accessible by year, even if its 20 years ago. I took all my info from another app to use this app and those are my issues. The keyboard covers what I am typing Please consider these updates.

-Kathleen ,

Timer count is super slow

Love the features of this app. Obviously very well thought out and put together. Thank you. I was surprised today (second day of use) when I hit stop on the seizure button that it had only been about 4 minutes on the timer. I’m timing it now and when this app stopwatch hit 30 seconds my Apple stopwatch app was around 2 mins 20 seconds. Only drawback I’ve found so far. Now that I’m done writing this review 50 seconds is almost 9 real time minutes. I hope there’s an easy solution to fix that but I still will use the app nonetheless!

Jeska3955 ,

My favorite… but could use some fixed

This is still my favorite app to use for tracking my seizures throughout my day. I love it’s simple interface, the graphs and data provided, and the customizable seizure options!
Features to consider:
I would LOVE if the timer didn’t stop counting when my screen goes dark (I can’t keep track of my phone screen during seizure).
I would also LOVE a widget for Apple, so that opening and tracking a seizure can happen with one tap.

App Privacy

The developer, Donny Cosic, indicated that the app’s privacy practices may include handling of data as described below. For more information, see the developer’s privacy policy.

Data Used to Track You

The following data may be used to track you across apps and websites owned by other companies:

  • Usage Data

Data Not Linked to You

The following data may be collected but it is not linked to your identity:

  • Usage Data
  • Diagnostics

Privacy practices may vary, for example, based on the features you use or your age. Learn More

Supports

  • Family Sharing

    Some in‑app purchases, including subscriptions, may be shareable with your family group when Family Sharing is enabled.

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