FOP Registry 4+
Patient-Driven Data for a Cure
INTERNATIONAL FOP ASSOCIATION
Designed for iPad
-
- Free
Screenshots
Description
The FOP Registry is the largest and most in-depth collection of FOP clinical and medical information and is independently operated by the IFOPA. The FOP Registry serves to help clinicians and researchers better understand FOP in order to accelerate the development and availability of disease-modifying therapies, and is also a great resource for practitioners to publish and help elevate awareness about this rare disorder.
Participants’ contributions, like yours, help the Registry to fulfill our mission. Anyone living with FOP is eligible to participate by entering information every 6 months. Doctors can also participate in the Registry by entering in their patients’ clinical information.
The IFOPA believes there is power in numbers, and the contributions of physicians and those living with FOP will provide a comprehensive insight into the disorder that will enable the community to further research efforts and opportunities to develop therapies.
What’s New
Version 1.3
Minor Bug Fixes.
Ratings and Reviews
App Privacy
The developer, INTERNATIONAL FOP ASSOCIATION, indicated that the app’s privacy practices may include handling of data as described below. For more information, see the developer’s privacy policy.
Data Linked to You
The following data may be collected and linked to your identity:
- Contact Info
- User Content
- Identifiers
Privacy practices may vary, for example, based on the features you use or your age. Learn More
Information
- Seller
- INTERNATIONAL FOP ASSOCIATION
- Size
- 38.9 MB
- Category
- Medical
- Compatibility
-
- iPhone
- Requires iOS 11.0 or later.
- iPad
- Requires iPadOS 11.0 or later.
- iPod touch
- Requires iOS 11.0 or later.
- Mac
- Requires macOS 11.0 or later and a Mac with Apple M1 chip or later.
- Apple Vision
- Requires visionOS 1.0 or later.
- Languages
-
English
- Age Rating
- 4+
- Copyright
- N of 1 Mobile App © 2022 Digital Infuzion Inc. All rights reserved.
- Price
- Free