NYU Langone Health 12+

When my husband entered stage 4 kidney renal failure it was time to set in place “where” to possibly be accepted as a transplant recipient. NYU was listed as one of our choices by his nefrologist (who wad not affiliated with NYU…we have since changed and have one of the best NYU nefrologists on their roster). Since entering the NYU system in October we have experienced nothing but the best quality of care, compassion and medical procedures. Though not a match for my husband, I am now completing the final stages of donor testing in the hopes that I may be able to give the gift of life to another. We live in Eastern Long Island and do not mind the 2 hour commute (on a good day) to travel to NYU. Not knowing NYU’s stats with kidney transplant success rates prior to coming, we are now grateful to be a part of NYU’s patient family. However, the success rate (which is 100%) is only one part of the equation. The bigger part is from the team who work at NYU Langone. Whoever we meet, whoever calls us, whoever becomes involved in our procedures have been wonderful. We are always give a wealth of information. And everything is explained. Not only that but the patient portal is fabulous, and all testing, appointments, and results are posted expeditiously. We are eager to continue in our journey (for both transplant and donor) and feel so fortunate to have NYU and its team as our medical facility.

For the last two years this app has been used continually by me to coordinate my husbands many many doctors appointments and monitor test results. It’s super easy learning to use on-the-fly and even allows you to communicate directly with your doctors!!! It also enables connection to other hospitals running on EPIC, (which clearly allows U/X personalization -meaning other hospitals can design their app differently so when you look for information it won’t be laid out the same) which is great for coordinating care and enabling multiple providers across health systems to share test results, and to read notes from other doctor visits, enabling greater continuity of patient care. Having had my husband in multiple hospitals, over a recent two-year period, can confidently say this is by far the best use of the customization functionality. Well well done and THANK YOU - this app helps me keep my husband alive!!

My question is how is it possible that I will take my girl to the emergency room on Wednesday the 15th with a fever of 102 and pain in her body? The girl was diagnosed with a urine infection and influenza, they sent me home with antibiotics, but the The girl continued with a fever between 103 —-105 on Saturday I returned her to the emergency room with a high fever and a swollen side of the face, I explained to the doctor that I felt that something was wrong with the girl's body, especially in her mouth, which looked infected They told me that her mouth looked fine and that the infection with the antibiotic would disappear, in the emergency room the girl had a fever of 103.5 and they still sent me home. On Monday I called the emergency because the girl continued with a fever of 105 even taking two antibiotics and they told me that a nurse would call me back and that never happened. On Tuesday morning I brought her to her pediatrician and she drew blood and did the tests which came out abnormal and at night the girl's tooth fell out and she almost choked on it. On Wednesday I brought Amelia to the dentist and they brought me to the emergency room at Bellevue hospital for surgery and here we have 4 days and we don't know when we're going home. This situation could have been avoided and I hope it doesn't happen to another Child.