I would have to say that I like the app. I like that there are features available without a subscription. I also like that my contacts were able to be reached when I did purchase the subscription. I believe that as my situation has changed because of epilepsy and now leaning towards the help of the government until I can get back on my feet, this the app should also accommodate until I am readily available to pay for it. Another point I would like to make is that there is a whole organization dedicated to educating and providing resources for epilepsy to the public, I would recommend that the app provide access to the organization as well as local recommendations for specialists.

As a parent of a child with epilepsy, this app has been worth every penny. We sleep better knowing our child is actively being monitored even while we’re all sleeping. Yes, we get some false alarms, but they’re easy to deactivate before contacts are notified. One thing I didn’t expect to be so useful, but am forever thankful for, is the night audio monitoring. Paired with the Apple Watch health heart data, we’ve detected subtle nocturnal seizures. Time stamped audio picked up automatisms (lip smacking, swallowing, grunts) and the detailed Apple Health heart monitoring picked up the tachycardia spikes. We were able to present this data to the neurologist and adjust meds. I wish the app itself had more detailed HR data beyond range during a monitoring session and active bpm. Having detailed HR spike data would be very useful. Worth noting is that monitoring revealed tachycardia issues, so until we get that addressed with cardio and neuro, our HR notification range has to be pretty high or we’d be getting alerts all the time. This limits the app’s nighttime heart rate spike notifications we would otherwise be getting at night. We could lower the notification range at night, but chances are, we’d forget when our child goes to school and then it would be alerting all day. That’s on us, not the app developers. Also, the support team is wonderfully responsive and informative. We had a connection issue between the watch and phone they quickly helped resolve the problem.

I’m brand new to epilepsy. Right now, I mostly using the app’s journal to record the various focal aware seizures I’m having (because it appears I’m not actually going crazy). And they just added medication, so I’m trying to get in the habit of that. I do have my son and husband set up as emergency contacts. Haven’t used that feature yet. Don’t really see myself using the sleep feature anytime soon. Wouldn’t love to have my profile synchronized with my Apple Medical ID, so I could have seizure records, diagnosis, med allergies, meds taking, surgery history, etc all in place (if they can’t sync, maybe your own medical ID that’s better?) and make it easier for hospitals and EMT’s to access the medical ID when we’re unconscious. Apple says it’s easy, but the hospital couldn’t handle it at all and I was still post seizure so only had 4 functioning brain cells, none of which knew how to work my phone.

I have epilepsy that isn’t very controlled, and I am a student that stays at home alone. This app has changed my life. I had so much anxiety while being alone and worried something would happen and no one would know. This app has given me SO MUCH peace of mind. It is pretty sensitive to repetitive movements even when on the lowest setting BUT I love it. It gives myself and my family so much peace when though it might alert for small things. My recommendation is to make a group message just for your alerts. It makes it way easier to have everyone notified if it’s just an accident, and if it is an emergency makes communication way easier. Across the board this is worth the monthly charge and I would recommend it to any of my fellow epileptic and non epileptic friends!!!💜