We love this app to track our daughter's seizures. We use it every time. It's great to be able to look back and remember information about specific events. It's a great tool to be able to show the doctors what her episodes are like or if one is different than her normal ones. My only suggestion to make this app more helpful, is if the videos would automatically save when you end them. Sometimes in the moment you don't have time to save it and then forget to. If you close the app without saving, you then lose the video and all the time/date information. It would be great if the video/quick capture would save episodes automatically when you end the video recording. Then if you need to go back in on a specific seizure episode, you can add extra information later.

My husband has epilepsy and I keep track of everything. I used to just keep info in a calendar, but this is so much better because I would sometimes forget important things to note about his seizures and this app prompts me to note everything. I love that the app on my phone and can view/update whenever I am. I love that I can print out the information for his doctor too! I highly recommend this app for anyone with seizure or if you have a loved one with seizures. This is the best app for tracking!!

For people with praxis-induced, reflexive seizures, you can only list the triggers as “other” rather than identifying coordinated movements, multitasking, and type of sensory stimulus that may have triggered the seizure (type of sound (siren, beeping), smell, visually moving stimulus (car ride, movie).Some of us have spinal injuries and brainstem injuries which cause muscle tone in both legs or both arms, hemipeligic, or alternating unilateral spasticity. The app only allows marking one leg or one arm at a time, the rest must be explained in the notes section. Atypical focal spasticity or tonic locations like mouth, jaw, neck, feet/toes, hands/fingers aren’t included.My seizure threshold is also impacted by rapid changes in barometric pressure—especially drops. I typically track that aspect with a migraine app, though it doesn’t typically cause migraines. it would be nice to have all that data in the same place.I wish that it would save the video recording to my local phone/iPad in addition to the cloud.I like that the video automatically times duration and I like that my family, caregiver and doctor can have valet access.

When I was first diagnosed, I had several simple partial seizures (after having been in the ICU with generalized status epilipticus). I used this app for a few weeks to keep track of the feelings of deja vu that my neurologist said were simple partial seizures. I stopped using it because I’m lucky that I haven’t had any major events. I just looked it up again tonight because of some deja Vu feelings (which my neurologist emphasized are “very small” seizures).