Help shape the first large-scale, long-term health study of LGBTQ people!
The PRIDE Study app allows members of the LGBTQ community to inform and influence what aspects of our health will be studied in the upcoming PRIDE Study.
The PRIDE Study is a long-term collaboration that will help health professionals make informed decisions about our health. Learn more below.
WHO'S ELIGIBLE TO PARTICIPATE IN THE PRIDE STUDY?
You are eligible to join the PRIDE Study if you are:
• 18 years of age or older
• A resident of the United States
• Comfortable reading and writing on your iPhone in English
• LGBTQ or another sexual or gender minority
This app is designed for research and education purposes only. This app is not meant to provide medical advice, attention, or treatment. If you are having a medical emergency, call or contact your healthcare provider.
WHAT IS THE PRIDE STUDY?
The PRIDE Study is the first large-scale, long-term health study of people who identify as lesbian, gay, bisexual, transgender, queer (LGBTQ), or another sexual or gender minority.
By participating in The PRIDE Study over time, your unique story teaches us about the health and wellbeing of LGBTQ people like you.
WHO IS CONDUCTING THE PRIDE STUDY?
The PRIDE Study is being conducted by doctors and research scientists at The University of California, San Francisco.
WHAT IS THE GOAL OF THE PRIDE STUDY?
The mission of The PRIDE Study is to improve the health of LGBTQ people. To meet this goal, we need to understand how being LGBTQ affects your health. The PRIDE Study deeply explores how the experience of being LGBTQ is related to all aspects of health and life. We study the unique health care disparities, strengths, and resiliencies of our communities. We share our findings through a variety of methods to impact LGBTQ communities and health professionals.
HOW IS MY INFORMATION KEPT SAFE?
As doctors and research scientists, we understand that information about your life and health is personal. Like our patients’ health information, it is our priority to keep the information you share private and secure. All communications between you and our app are secure electronic transmission, and our data are physically secure. All our systems meet the requirements defined by federal law (United States Health Insurance Portability and Accountability Act or HIPAA).
HOW IS MY INFORMATION SHARED?
Your participation in The PRIDE Study is wasted if we don’t share the results with the people and organizations that can make real change for LGBTQ health. Results from The PRIDE Study will be shared directly with you, healthcare professionals, policy makers, and community organization. We will never share individual information; only aggregated (grouped) data will be shared.
The next step of The PRIDE Study has launched! With the introduction of The PRIDE Study web platform, you will now be able to participate from your computer, tablet or mobile device. The app now provides direct access to The PRIDE Study web portal and a preview into how you can be involved in the study to advance LGBTQ healthcare.
Ratings and ReviewsSee All
Don't download if...
You're impatient, then this app is not for you. I've had this app for what's going on three weeks now, and a survey has not appeared. The people who have made the app have posted in the community section ONCE, and the traffic has dramatically died down.
They've promised us surveys over a week ago, and none have yet to appear. Of course I'm growing impatient myself, but I'm still holding on to see what's going to happen next... All in all, I am becoming annoyed that nothing has appeared on my dashboard or I haven't been informed as to why it's taking these people so long to roll out interactive surveys and questionnaires. Unless you like to have apps on your phone that take up space and collect dust, then this is definitely the app for you!
There's been nothing new for the past 8 months in terms of surveys from the UCSF Pride Study. Was the project shelved, abandoned or did not receive any funding to continue? I would like to know.
Unprofessional Study = Misleading Data
I really wanted this study to be a positive experience because we really need good data about adult LGBTQ health needs. We really need good data about teen/child LGBTQ health needs too, but this study was specifically about adults.
However, I am sad to say that I ended up deleting this app after giving it several chances – I just don't believe anything helpful will come of what is essentially a social message board.
Last time I checked, 25% of participants admitted to being under age 18, yet for some reason they were still allowed to participate. The study is only for people ages 18 and up, so this alone should be cause for concern in terms of gathering valid data from a specific demographic.
Additionally, a large portion of the topics were not about health at all – they were social topics. And while those are completely valid topics, they are not valid in the context of a study about health. When researchers do not limit the type of data they collect, everything becomes muddied. The end result was more like Reddit and less like a respectable study.
I'm sorry to say that I hope the data collected from this doesn't see the light of day because we need accurate information, not the product of a social chat room with no demographic control.
- University of California at San Francisco
- 16.6 MB
- Health & Fitness
Requires iOS 10.3 or later. Compatible with iPhone, iPad, and iPod touch.
- Age Rating
- Frequent/Intense Medical/Treatment Information
- © University of California, San Francisco
With Family Sharing set up, up to six family members can use this app.